ADHD Medication Shortage Impacting School Community
Working as a freelance writer for Granite State News Collaborative I was given the opportunity last spring to explore the impact the ADHD medication shortage had on New Hampshire schools districts. As a mother who has had to spend far to many hours calling both doctors offices and pharmacies to ensure my children had the medication they needed this piece hit home.
National ADHD Medicine Shortage Impact Granite Staters
By Cheryl Linskey, Granite State News Collaborative
Balancing a full-time job, raising a family, and serving as President of the New Hampshire Association of School Psychologists, Kate Grieve already had a lot on her plate. But the last few months have seen the additional stress of making sure her son has the medication he needs daily.
Grieve is one of many parents dealing with the impact of the national shortage of stimulant medication used to control ADHD. Each month she needs to make sure the pharmacy she uses has the prescription medication Vyvance in stock that her son takes.
“As a parent, you have to push and call. You are the middleman,” she said. “I had to work with different pharmacies to get what we needed. You need to be proactive or your child will have a lapse.”
Grieve had a scare earlier this year when her local pharmacy was unable to fill the prescription because of the shortage, so she had to call around to other pharmacies to see if they had the medicine in stock. She was one of the lucky ones who was able to get it filled before he ran out. Her son was on his last pill before she finally was able to get his prescription filled.
The Food and Drug Administration posted a notice of an immediate Adderall shortage on their drug-shortage website in October 2022, and many other ADHD medications have since been added to the list, including Vyvance, the medicine Grieve’s son is prescribed.
Grieve said the shortage is having a domino effect, causing a supply crunch for other stimulant medications besides Adderall. When pharmacies are unable to fill one prescription due to a shortage, doctors may prescribe other drugs that are more readily available. That, in turn, increases the demand for those backup medications, causing those to be in shorter supply. The prescription drug Metholphanidate, also used to help with ADHD, has also been in short supply because of the national shortage.
Even with other stimulant mediations available not all medications used for ADHD affect patients the same way, and it can take several attempts for patients to find the right medication that will help them focus.
Keith Nice, a reading specialist at Barrington Middle School who also suffers from ADHD, said he has experienced both professionally and personally that not all stimulant drugs used for ADHD work the same for each person. “ADHD medication is very much like finding the best sneaker that fits you,” he said. “You need to find the best medicine that will fit.”
Nice said many of his students feel the difference when they are on their medication and when they are not. “We call it engine medicine and one of my students said to me, ‘It definitely helps me read,’” he said.
Grieve echoed that her son knows how important this medication is for his learning and ability to interact with his friends.
“[He} wakes up every day and he knows he needs his meds,” she said. “When he
is not on his meds he is a different child.”
The main issue her son has when he is not on his medication is the inability to focus, which becomes very frustrating for him. Her son would not be learning without it, Grieve said.
“My heart just breaks when he can’t get his medication,” she said. “Kids and adults with ADHD often know social norms in life, but they can’t always apply them and that is why medication helps.”
‘Finger-pointing’
There are conflicting explanations for the shortage, ranging from additional restrictions being placed on manufacturing companies, to difficulty in getting the active ingredients needed to produce the medication.
“There is a lot of finger-pointing,” said Dr. Michael Smith, a clinical pharmacist at Dartmouth-Hitchcock Medical Center.
According an article, Understanding Why Adderall Shortages Are Shrouded In Mystery, published in Bloomberg.com, every year the Drug Enforcement Administration sets a quota or limit on the amount of raw materials used for many controlled substances, like ADHD medications. This is to make sure these medications are not abused. The DEA divides the quota up, giving each manufacturer an allotment.
Smith said drug manufacturers blame the DEA’s restrictions for the shortage, but the DEA says drug companies aren’t even producing as much as they are legally allowed under the quotas.
“It is important to understand how many steps are in the process in making a drug before it gets on your doorstep,” Smith said.
Another possible reason for the shortage is an increased diagnosis of ADHD during the pandemic, Smith said. During the pandemic, doctors were able to meet with patients and prescribe medications virtually. That may have allowed doctors to reach previously undiagnosed patients, he added.
An additional burden to those patients is how often they are required to have prescriptions filled. Because ADHD medications are controlled substances, many states place a 30-day limit on prescriptions, meaning doctors need to call in a new prescription each month and the availability of specific medications can fluctuate. Smith said pharmacists are contacting drug manufacturers regularly to find out what is available to buy.
“This is a stress on patients, providers, and pharmacies,” he said. “There is no good solution. The best thing you can do is keep checking.”
According to New Hampshire Board of Pharmacy, controlled substances is limited to a 34-day supply, but not more than 60 days. Physicians in New Hampshire can increase the length of prescriptions, which may help ease the burden for patients. In May 2021, the board approved an increase to a 90-day supply for Adderall, Methylphenidate if either such prescription specifies it is being used for the treatment of attention deficit disorder, attention deficit disorder with hyperactivity, or narcolepsy.
Smith said there are seeing a record number of drug shortages in the country, not just with ADHD medication. The average drug shortage lasts about a year and a half. “Unfortunately, there is no way to determine the end,” he noted.
Leveling the playing field
Grieve stresses that it is important to understand that medication on its own is not a cure-all for those who are battling ADHD. There needs to be a combination of medication, teaching tools, and strategies to help students focus in school, she said.
Felicia Sperry, a school psychiatrist for the Oyster River School District in Durham, agreed. There are three recommendations for helping students with ADHD in school: providing accommodations at home and school, providing occupational or cognitive behavioral therapy, and medication.
“One by itself is effective, but not as effective as all three working together,” Sperry said. “Meds don’t make it all better, but it levels the playing field.”
She explained that ADHD is not just about attention; it is the inability to stop what you’re doing. It is a combination of the need to focus and regulate behavior. Sperry explained that a child with ADHD needs to exert more energy to do even simple things like sit in a chair and having to struggle with these things can have a severe impact on their mental health as well she said. “Kids with ADHD have an increase in anxiety and depression,” she added.
Sperry said many of her students see the difference when they are on the correct medication. “One kid compared it to horseback riding. ‘Oh, this must be how my horse feels with his blinders on.’”
The lack of medication can not only harm education but there are also health concerns with a student being off their medication for a significant amount of time.
Laurie Fleming, a school nurse for the Gilbert H. Hood Middle School in Derry, said when students are not getting their medicine and have to stop abruptly and then restart, they report significant symptoms like dizziness, headaches and not eating.
“Being consistent is huge,” she said.
Fleming provides ADHD medication to eight students in her school, and two have repeatedly had issues filling their medication. In particular, the 5-milligram Methylphenidate has been difficult for her students to get filled.
Workaround
A workaround one family has found is filling 10 milligrams and cutting them in half. The prescription is able to be filled and the medicine lasts twice as long.
It is important for parents to stay in constant contact with the pharmacy, Fleming said. “I know at least one of the moms is checking regularly to get them filled.”
She is also concerned about how the shortage will impact students in their schooling long term: “If you can’t learn a certain skill set, you can’t build on it.”
Fleming stresses that parents should keep schools aware of being unable to fill their medication. “It is hard when parents don’t tell educators about the meds issues,” she said. “The nurses can’t tell (by law), but it would be helpful for them (classroom teachers) to know what is going on.”
Adult impact
This shortage has also impacted many adults attempting to concentrate in the work and home environment.
Nice shared his experience of having to go without his medication. Several months ago, he was unable to fill his Dextroamp prescription for a week and a half and noticed a major difference when he had no medication.
“I am pretty easy-going, but when I don’t take my meds it is amazing to me how short I am,” he said. “I was not as patient with my kids. I know I was upsetting my kids and my family, and that prompted me to call around to make sure I could get it filled.
“I’m worried that every month … it won’t get filled,” he said.
Not being able to fill his medication is something 25-year-old Jace Troie of Manchester experienced. Troie, an employee at the state’s office of the National Alliance on Mental Health Illness (NAMI-NH), was not able to get his prescription filled for six weeks.
“A friend of mine, who was a pharmacy tech, called and told me about the Adderall shortage,” he said. “At first, I didn’t feel the impact because I took the slow-release capsules. But, after about a month, I was impacted (not being able to fill his prescription at all).”
Troie said he found a temporary solution by rationing the low-dose boosters that he had at home.
“I think I have about a week left of the low dose,” he said. “So it would probably be a good time to start calling around to area pharmacies.”
Checking area pharmacies to see if they have the proper prescription and asking his doctor’s office to call it that pharmacy was one of the many tips he received from his mother, a retired pharmacist. She also suggested calling the pharmacist to see if they have a higher dose that can be split, having the pharmacy call when the prescription is filled so the medicine it doesn’t get sold to someone else if he doesn’t pick it up on time, or ask the pharmacist what strength is available and have his doctor call in a prescription that meets what the pharmacy carries.
He said that even with all the advice his mother is giving him, the shortage is still difficult to navigate.
“Without having Adderall, I am having a difficult time focusing on important things, like filling my Adderall,” he said.
Troie said following specific steps helps keep him organized, but without medication, it is more difficult. “It’s not that we don’t want to do the task. It is starting the task that is the problem,” he explained.
His co-workers have all been very supportive by offering to help him organize his calendar to take tasks off his plate so he is not as overwhelmed. Troie, a DEI (diversity/equity/inclusion) and program assistant for NAMI-NH, said working for the mental health nonprofit has provided the support he needed in the workplace.
“When I was first impacted, I told them and they all offered to help. I feel like I’m in a work environment where I can be honest about what I need,” he said.
Troie encourages open communication and understanding in both the classroom and the workplace.
“We could use a little extra patience. A little extra patience goes a long way.”
These articles are being shared by partners in The Granite State News Collaborative. For more information visit collaborativenh.org.